Living life one day at a time as a family of six...3 busy and bouncy boys and 1 Ukrainian princess. Our third son Joaquin was our unexpected blessing who came to us with a little something extra called Down syndrome and inspired us to adopt Sofia an orphan we fell in love with through Reece's Rainbow. We hope that our story will help open people's eyes to the beauty and gift that ALL children are. We are all more alike than different!
Sunday, October 12, 2008
It's a Tooth....AGAIN!
So, tooth #2 decided to arrive today and joined tooth #1! Yahoo! Side by side on the bottom they both sit and it is so adorable! No more toothless grins.
Saturday, October 11, 2008
Great news!
I read the book "GIFTS: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives" when I first learned about Joaquin's diagnosis and it quickly became a lifeline for me. It was absolutely instrumental in helping me find peace and happiness with the diagnosis. It's a book filled with over 60 stories written by mothers about their children who have DS. "Gifts II" is the sequel to the first book and will expand on the topics of acceptance, courage, friendship, awareness and joy. I saw earlier this summer that the editor was looking for submissions to be hand selected for the new book, so Hector and I each submitted one.
We are so thrilled and the news brought tears to Hector's eyes. To think that we will be able to help others the way the stories in the first book helped us is just priceless.
Friday, October 10, 2008
More Alike Than Different
Can you guess who is who?
One of the biggest goals of Down Syndrome Awareness Month is to help people understand that people with Down syndrome are more alike than different. Here are each of our boys about the same age in the same hand knit beanie that my Grandma Esther made when Diego was first born. Even though children with Down syndrome have many common physical characteristics, they still have 46 chromosomes that came from each of their parents so they will still look very similar to their siblings. I think these photos prove it!
Thursday, October 9, 2008
Baby Flex
One of the characteristics of Down syndrome is "an excessive ability to extend the joints." Babies with DS are extremely flexible and Joaquin is no exception. Here is a photo of one of his most favorite positions. We are constantly reminding him not to poke his eye out...with his toes!!!
Wednesday, October 8, 2008
Abuela
Here is a photo of Joaquin and Abuela (Hector's mom) when they met in Mexico earlier this year.

Tuesday, October 7, 2008
The "Face"
So I just have to clarify this picture (and the other "face" pictures in the Buddy Walk slide show.)
Joaquin is not unhappy in these photos nor is he about to cry. In fact, he still rarely if ever cries at all. This is the "face" that he makes whenever the sun hits his face, or it's too bright outside, or when we shine the light in his eyes during his sensory stimulation program. It is hilarious to see him make it because he can really exaggerate it and his brothers get a kick out of it too. It cracks us all up! Joaquin will make this face and then quickly turn it off when you say to him "open your eyes" or if you put him back in the shade.
I think it's a preview into his personality. I think he's got a little "ham" in him. We love the "face"!
Monday, October 6, 2008
Questions?
Subscribe to:
Posts (Atom)