Wednesday, August 11, 2010

From A Sister

This is from one of my "sisters" and I think she makes a beautiful statement about parenting a child... special needs or not. Here it is. Thank you Susan for explaining this so beautifully!

When a parent hears the news or finds out their child has a difficulty, there is always a grieving period of the loss of what they thought they had and hoped for their child.  That can come at any time.  Birth, childhood, teenage years, or adulthood.  A difficult diagnosis, death, learned addictions, handicaps, different sexual preferences, whatever comes as a big surprise and possibly affects many of the hopes and dreams you have for your child as well as their quality of life, prosperity & longevity, and/or future generations takes time grieving and support while learning how to understand your part in helping the ones you love.  We feel really grateful for this difficulty because we have learned so many wonderful lessons from our beautiful little girl who has Down syndrome.  She radiates love and in reality it didn't take long at all to see it really isn't all that difficult or different, once we understood.  The initial fear of the unknown scared us, but it wasn't hard to find hope.  We have been seeing a whole new world of possibilities and have connected to amazing and inspiring children, people, families, professionals, and friends that have broaden our understanding and have instilled in life what matters most.  It is such a blessing that such a small little child could open the doors to such a beautiful place that challenges us to want to be better.  Who reminds me all the time what's most important in this life- people, especially those you love.  All children can offer this gift because EVERY child has the potential to stretch and challenge a parent if you accept the invitation whenever they come, the key is to have faith, learn, love, laugh, and work incredibly hard to assist, mentor, and encourage & support the best out of each of them no matter what level that is and to CELEBRATE all the little miracles and wonderful achievements.  Seeing our daughter work hard for everyday life without complaining,  with consistent effort having great spirits about her task.  Well it makes us appreciate and celebrate all the wonderful little things in life we take for granted.  She has the potential to achieve pretty much everything we can with a special thanks to the opportunities in America and those who have gone before us and fought for our kids' rights and for all those who love and support and teach her now- like any other child receives.  We are very lucky living in the day and age we do.  These children are more alike than they are different.  They have a special purpose to teach us "normal" people.


  1. Beautifully complete. Thank you, I collect these precious gems.

    I love many parts of the blog Enjoying the Small Things (Kelle Hampton) page Special Needs I read today. Powerful stuff there too.

    And two videos:

    A recent post on FB of I'm Down with You trailer of a mom stating how great it is, a dad stating how his life was personally saved (like I feel mine is and with it a compulsion to spread this magic effectively, maybe secretly through inclusion and obvious facts) and gratefulness being FOUND which as a generation we have been seeking.

    trailer for Deedah

  2. Although I never mourned River's Dx, I understand this because being a parent you just want to help your child any way you can. I am quirky, LOL, and so is my typical child, as well as my child "with a Dx". It is just so important to adopt that "can do attitude" and just keep swimming. I always say "I am enjoying the magic of ordinary day's"... and away we go. :-) I love these pearls that you share.